A year ago, my daughter started seizing in the back seat of my car.
Since that day she drinks a syrupy medicine twice a day and I carry a shot of Diazepam with me wherever we go. If she starts seizing again, I’ve been instructed to call 911 and watch the clock. If she seizes for five minutes then I inject the Diazepam in her rear.
Fortunately, she hasn’t started seizing again. From what I see, the seizure has had no adverse effect on her. Obviously, it is not possible to know what she would be like if she hadn’t had the seizure – but her curiosity and awareness of the world grows daily. She teaches me children’s songs and I teach her Beatles songs.
The past year hasn’t been about major breakthroughs – its about hundreds of incremental improvements. I am happy to say that Emma is really becoming herself. Now she is three and we can start to see her personality – hints of who she will be.
Emma started school a few months ago and has picked up some wonderful bad habits from the other kids. My favorite is when she doesn’t get her way and starts fake crying – the crying lasts for about five seconds and then she puts both hands on her nose, whinily saying “Nose”. I’ll have to get some video of it.
The part of that that really makes me happy is that she wants to get her way. That means something to me – that means that she knows what is going on around her.
I’ll share another thing she loves. I’m not a big fan of singing songs in the traditional manner every single time, that gets boring. So I’ll change the tempo of a song like “Twinkle Twinkle Little Star” when I sing it with Emma – changing it from “Twin-kle Twin-kle, Lit-tle Star” to “Tweeeeeeeeeeenkle, Tweeeeeeeeeeeeeeeeeeeeeeenkle, Liiiiiiiiiiiiiiiiiit-tle Staaaaaaaaar”. She absolutely adores it. Every time she sees me she grabs my mouth and starts singing it that way to me. She is also very quick to adapt. If I change the tempo in a different way then she will do the same.
These incremental improvements don’t lend themselves to my concept for her site. My intention there was always to show the major milestones and the big ways that she overcomes expectations. Because of that, I haven’t posted anything about her progress in a long time. I fear that may make anyone who has heard her story think she isn’t making progress or that she hasn’t recovered from her seizure.
So going forward, in addition to the major milestones, I will be doing “State of the Emma” posts there, to share all the little things that turn into something big when put together. I hope to have one out soon.
Thank you for caring about Emma.